[give_form id="19690"]

Voices Of Incontinence Personal Story: Knowledge Is Power

This story is a part of the National Association For Continence’s “Voices Of Incontinence” campaign, which shows, in patient’s own words, what it’s like to live with incontinence:Don’t Let Incontinence Control . Learn more about this campaign, watch the videos, read other stories, and find resources to manage bladder leaks here.

I’ve always been an outspoken person. My husband use to tell me that I never knew a stranger. Outgoing, willing to stand up for myself, proactive. Those are my strongest traits.

When I started experiencing bladder leaks, it was no different.   I began noticing a few little leaks during my long daily walks. Just a couple a week, but they were a bit unsettling. But when I came back one day and wasn’t able to make it to the bathroom in time, it was enough to jolt me into action.

Don’t Let Incontinence Control You: My Story

I immediately did what I thought anyone would do – I took care of the immediate issue by finding a good absorbent product. I wanted something that I could move easily in since these leaks mostly happened while I was doing my walks. Also, it was important to find something that wouldn’t be really bulky and show through my workout clothes. After lots of research online and reading about a million reviews, I found the perfect product and ordered a couple of sizes to try them out. Worked perfectly!

With that part under control, I set about trying to figure out why my leaks were happening in the first place and what I could do about them.  I made an appointment to see my doctor, who asked me all kinds of questions and finally said that he thought I had Overactive Bladder. Basically, the nerve connections from my brain to my bladder are a bit off, causing me to have to empty my bladder quite often, and quickly. It can be triggered by certain things, too, which is maybe why I always felt like I had to go while I was on my walks.

My doctor prescribed a medication to help, and it did for a while. But it also made me feel pretty dry, and I had some constipation. He urged me to stick with it for a few months. But during that time, I was doing my own research to see what else was out there. Turns out a lot of things! I was surprised to learn that Botox could even be a solution, and I asked him about it on my next check up.

My doctor didn’t perform that procedure himself, so he referred me to a specialist who did. (That’s why it pays to do your own research, ladies! My own doctor might have never told me about that option – or even known about it.)

I met with the urologist. He asked me even more questions about my bladder leakage, confirmed that I had Overactive Bladder and said that I was actually a great candidate for Botox.  The way it works is that Botox is injected into different parts of the bladder, and that helps to block the nerve signals that trigger OAB.

He got me all set up and told me what to expect. The whole procedure happened in his office and took about an hour, start to finish. I couldn’t believe it was so easy.  I had read that some people are unable to empty their bladder for a while after the procedure and need to use a catheter, but that didn’t happen to me. In fact, nothing really happened except that I found I had almost no leaks after a couple of weeks. Hooray!!

From Leaks to Liberation: My Battle with Overactive Bladder

It’s pretty easy upkeep too – the treatment lasts for about 6 months so I made my follow up appointment before I even left the office.

I’m so thrilled to be able to do my walks without worrying about having bladder leaks. And I can’t stress enough how much my own research and insistence with my doctor resulted in this outcome.

Don’t sit back and just let things happen to you. Do your research, be your own advocate, and take action to find a solution that works. After all – if you won’t champion your own health, who will?

Debra M.
Bridgeport, CT

Comments

Leave a Reply

Your email address will not be published. Required fields are marked *

This site uses Akismet to reduce spam. Learn how your comment data is processed.

Related Articles

A person wearing an orange cardigan and white pants sits on a couch, clutching their stomach with both hands, appearing to be in discomfort or pain—perhaps a sign that attending to gut health is more important than ever.

UTI and Your Period: What You Need to Know

If you menstruate, experiencing a UTI while on your period can be an uncomfortable experience.
While a menstrual period may bring pain, pelvic pressure, and make you feel like you need to urinate more, a UTI can tack on additional symptoms.
Feeling a sudden, strong urge to use the restroom, burning when you pee, noticing cloudy urine, or pain that feels different than your usual cramps shouldn’t be ignored.

Keep reading to find out the relationship between UTIs and your period. Plus, learn what to do if you suspect you may have a urinary tract infection during your cycle.

A smiling young woman sits with a display of incontinence products. Text describes how she and her mother, both passionate health advocates, invented solutions after noticing missing options. The image promotes the Life Without Leaks NAFC podcast.

How One Young Woman Turned Incontinence Into Innovation

Growing up with spina bifida meant Bella Duarte-Crespo faced challenges most children never have to think about, including managing bladder and bowel incontinence at school. When she and her mother couldn’t find a product that met her needs, they decided to create one themselves.

In this inspiring episode, Bella shares how a personal struggle became the foundation for a fast-growing business, a passion for design and a lifelong commitment to disability advocacy. Along the way, she discusses living with spina bifida, overcoming embarrassment, building confidence and why being prepared has become her key to living life without leaks.

Whether you’re living with incontinence, caring for someone who is, or simply looking for a story of resilience and determination, Bella’s journey is sure to inspire.

A person wearing a peach top and beige skirt holds a teal awareness ribbon pinned to their waist, standing against a light green background—highlighting the importance of gut health and raising awareness about how to improve gut health.

Bladder & Urological Cancer Awareness: What You Need to Know

When it comes to cancer awareness, conditions such as breast, lung, and colorectal cancer often receive the most attention. Yet cancers of the urinary tract and male reproductive system—collectively known as urological or genitourinary cancers—affect hundreds of thousands of Americans each year.

A person wearing an orange cardigan and white pants sits on a couch, clutching their stomach with both hands, appearing to be in discomfort or pain—perhaps a sign that attending to gut health is more important than ever.

UTI and Your Period: What You Need to Know

If you menstruate, experiencing a UTI while on your period can be an uncomfortable experience.
While a menstrual period may bring pain, pelvic pressure, and make you feel like you need to urinate more, a UTI can tack on additional symptoms.
Feeling a sudden, strong urge to use the restroom, burning when you pee, noticing cloudy urine, or pain that feels different than your usual cramps shouldn’t be ignored.

Keep reading to find out the relationship between UTIs and your period. Plus, learn what to do if you suspect you may have a urinary tract infection during your cycle.

Take NAFC's Annual Survey!

An older woman looks at an open door beyond blocks labeled support, information, cost, and time. Text encourages taking a survey about barriers to incontinence treatment. NAFC logo is shown.

Each Year, NAFC conducts an annual survey designed to get a pulse on a topic important to our readers. This year, we want to know – what’s holding you back from getting treatment?  Please consider taking 10 minutes to complete this brief survey. Your feedback will help shape future programs and initiatives offered by NAFC!