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The NAFC Life Without Leaks Podcast

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INFORMATION & INSPIRATION FOR THOSE LIVING WITH INCONTINENCE

Life Without Leaks is the National Association for Continence new podcast series. We discuss important topics for those living with incontinence, including hints and tips for better management, insights on state-of-the-art medical care and stories offering hope and guidance for those on the path to drier days. In addition to playing our episodes here, you can subscribe on all major podcast platforms – scroll down for links to your favorite.

Listen To Our Newest Podcast Episodes Below!

Incontinence can be challenging for almost anyone, and it can be particularly difficult for frail, older patients as well as those on Medicare and Medicaid. Today’s guests are here to let you know that it doesn’t have to be. They’re here to give us a sneak peek into a soon-to-be-published study that patients, physicians and caregivers can all take comfort in, because it demonstrates how an easy-to-implement program can generate significant symptom improvement and dramatically increase quality of life for incontinence sufferers. For more than twenty years, Tenderheart Health Outcomes has been offering personalized incontinence coaching, high-quality products and close, personal support for members of the incontinence community. …
If you’ve had enough of leaking when you laugh or cough or sneeze, if you’ve spent enough on pads and products to help keep you dry, and if you’re tired of just managing your condition rather than seeing real improvements, we have good news for you: Stress urinary incontinence can be treated. Today’s guest is Gloria Kolb, founder and CEO of Elidah, the medical device company behind Elitone and Elitone Urge. The Elitone family of products are the only FDA-cleared external solutions that tone your pelvic floor and calm your overactive bladder. Gloria discusses what Stress Urinary Incontinence is in detail, explains why it’s so common and addresses the full range of treatments that patients have available to them. …
If you think that your only hope for treating overactive bladder is to focus on your pelvic floor muscles, you may be overlooking a different type of approach that’s been proven successful for hundreds of thousands of patients: Nerve stimulation. It turns out that certain nerves play a critical role in bladder function, and there are devices that can stimulate those nerves to substantially reduce leaks. Many patients find that their symptoms improve by 50% or more with a simple, in-office procedure called sacral neuromodulation. Today’s guest is Dr. Vikas Desai, a urologist, a board-certified member of the American Urologic Association and a member of the Society of Prosthetic Urologic Surgeons, to tell us more about it. …
Anyone who lives with incontinence knows that leakage isn’t just embarrassing or uncomfortable – it can create skin issues that range from simply irritating to genuinely endangering. Today’s guest is Kolo Wilkinson, Clinical Nurse Lead with Tranquility Incontinence Products, and she shares with us advice and insight on how to best care for your skin, how to choose the most effective products and much, much more. …
Did you realize that half of all women will experience incontinence? Or that more people have incontinence than either diabetes or heart disease? As alarming as those figures are, incontinence is still something that too few people are willing to talk about, and the end result is that millions suffer in silence – often for years and years – even though there are treatments that can work wonders for them. That’s why NAFC is introducing the We Count campaign. …
Bladder leaks can come as a shock for new moms, and can be overwhelming to deal with when caring for a new baby. Learn how to manage them from Aleece Fosnight, MSPAS, PA-C…

LISTEN ON YOUR FAVORITE PLAYER…

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YOUR HOSTS

sarah jenkins.

Sarah Jenkins

Sarah became NAFC’s Executive Director in 2024 after having served for nearly 10 years as the organization’s Marketing Director. In that role, she was responsible for a number of critical initiatives, including program development, patient outreach, industry relations, content creation and more. She comes to NAFC with substantial marketing expertise, having served most recently in a variety of roles with Abelson Taylor, one of the country’s leading medical advertising agencies. She holds a bachelor’s degree in business administration and marketing from the University of Illinois Urbana-Champaign.

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ROBIN STERNE

Robin and Steve may have actually crossed paths back at the Montreal Olympics – while he was in the water, she was working as part of the ABC film crew covering the event. Since then, she’s moved from Montreal to South Florida (though she still misses the bagels), and she’s dedicated her career to marketing, advertising and graphic design for some of the largest and most well known companies in America. In fact, she was responsible for designing Blockbuster Video’s very first website back in 1997!

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BRUCE KASSOVER

Bruce has been working with the NAFC for more than 8 years with an emphasis on communicating the organization’s story of advocacy and support. He’s dedicated his 3-decades-long career to marketing and messaging, frequently with a focus on healthcare. An inveterate traveler, Bruce has been extorted by border guards in Moldova, thrown off a dog sled in the Arctic Circle, and snapped at by an unhappy sea lion in the Galapagos, among other adventures.

WHAT OUR LISTENERS HAVE TO SAY

“Finally learning about my condition on my way to work and figuring out solutions I would have never thought of …it’s like having that talk with a friend I wanted to have, but have been way to embarrassed to bring up! “

– Holly K.

“It’s great to hear patient stories in their own words – makes me feel like I’m not so alone when trying to deal with my bladder issues. Looking forward to more episodes!”

– Angela B.

“Instant subscribe! It’s hard finding good, reliable information about incontinence. Nobody ever seems to want to speak about it unless they’re talking in medical terms. I like that it’s easy to listen to but has useful info.”

– Chris F.

DO YOU HAVE A STORY TO SHARE?

life without leaks nafc podcast

We’re always looking for guests with interesting stories, insights, and perspectives to share with others in the incontinence community. If you’re a patient, a physician, or a caregiver who would like to participate in our podcast, reach out to us today – simply send an email to memberservices@nafc.org and we’ll follow up with you promptly.

life without leaks nafc podcast
pelvic floor power podcast

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In this episode of Life Without Leaks, we’re joined by Dr. Ryan O’Leary, advanced fellow in inflammatory bowel disease, for a deep dive into inflammatory bowel disease (IBD).

Dr. O’Leary breaks down what sets Crohn’s disease and ulcerative colitis apart from other digestive conditions, explaining how IBD can affect patients at any age, from early childhood to later adulthood, and why diagnosis can sometimes be delayed. He explores the complexity of inflammation, the role of the immune system and how IBD can impact far more than the gut, including joints, skin, eyes and mental health.

The conversation also covers realistic treatment goals, the expanding range of medications available today, dietary considerations, when surgery becomes part of care and why personalized treatment plans are essential. Importantly, Dr. O’Leary addresses the emotional toll of living with a chronic condition and emphasizes the importance of persistence, advocacy and specialist care.

If you or a loved one is navigating unexplained GI symptoms or an IBD diagnosis, this episode offers clarity, reassurance and a hopeful look at what’s possible with modern care.

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From Pain ‘Like Lava’ to Remission: Living Fully with Crohn’s Disease

In this moving patient story, we speak with Gerri, a Crohn’s patient, about her journey from debilitating digestive symptoms to complete remission.

Gerri shares what it was like to live in New York City while navigating relentless urgency, severe abdominal pain she describes as “hot lava,” and the constant need to locate the nearest restroom. After months of worsening symptoms and a turning point moment with her mom, she sought specialist care, leading to bloodwork, testing, colonoscopy and, ultimately, a diagnosis.

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